Want to create an interactive transcript for this episode?
Podcast: It Happened To Me: A Rare Disease and Medical Challenges Podcast
Episode: #63 Redefining “Incompatible with Life”: A Mother’s Mission for Trisomy 18 Awareness Part 1
Description: In this powerful episode of It Happened To Me, co-hosts Cathy and Beth sit down with Sarita Edwards, an award-winning advocate, rare disease leader, and mother to Elijah, who lives with Full Trisomy 18, also known as Edwards Syndrome.
Sarita Edwards, MHA is the CEO & President at the E.WE Foundation, a global healthcare advocacy organization for families living with Trisomy 18 (Edwards Syndrome) and other rare diseases. Sarita's son Elijah was diagnosed in utero with Full Trisomy 18 which began her efforts of advocacy and public policy. Sarita is recognized as a 2021 world's top patient expert and s...