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It Happened To Me: A Rare Disease and Medical Challenges Podcast

The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are...

#80 The Expert's Guide to Autism: Diagnosis, Red Flags, and Evidence-Based Care

50 mins; March 16, 2026

#79 How Acupuncture Can Support Fertility

32 mins; March 02, 2026

#78 Sudden Vision Loss and Giant Cell Arteritis: When “Healthy” Changes Overnight

37 mins; February 16, 2026

#77 When Chronic Illness Changes the Tune: A Musician’s Journey Through Diabetes and Stroke

47 mins; February 02, 2026

#76 When Pain Never Stops: A Survivor’s Story of Chronic Pain and Hope

40 mins; January 19, 2026

#75 Genetic Testing for Rare Diseases with Amy Patterson

42 mins; January 05, 2026

#74 Genetic Counseling for Rare Diseases with Kira Dineen [Re-Release]

31 mins; December 15, 2025

#73 Running Toward a Cure: NF2 Advocate Becomes Marathon Runner to Raise Awareness & Funds

36 mins; December 01, 2025

#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release]

34 mins; November 17, 2025

#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome

27 mins; November 03, 2025

#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA

26 mins; October 20, 2025

#69 Breath by Breath: Kenny Kasnett’s Journey Through Lung Disease and Transplant

40 mins; October 06, 2025

#68 The Hidden Danger in Newborns: OTC Deficiency Explained by a Geneticist and a Mother

33 mins; September 15, 2025

#67 Exploring Clinical Trials in Latin America with Julio G. Martinez-Clark

61 hours 25 mins; September 01, 2025

#66 Not Just Fatigue: Global Advocating for ME/CFS from Bed

51 mins; August 18, 2025

#65 Invisible Swells: Surviving with Hereditary Angioedema Type III

50 mins; August 04, 2025

#64 Challenging the Label: Living and Thriving with Trisomy 18 Part 2

31 mins; July 21, 2025

#63 Redefining “Incompatible with Life”: A Mother’s Mission for Trisomy 18 Awareness Part 1

35 mins; July 07, 2025

#62 Vision Through Music: Empowering Visually Impaired Kids with Adaptive Music Education

38 mins; June 16, 2025

#61 How Jack’s Basket Is Changing the Down Syndrome Diagnosis Story

43 mins; June 02, 2025

#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell Advocacy

36 mins; May 19, 2025

#59 From Diagnosis to Memoir: Laura Kieger’s Mission to Share Her Family’s FAP Story

30 mins; May 05, 2025

#58 Living Deafblind: Carrie Francis’ Resilience After 5th Degree Facial Cleft

44 mins; April 21, 2025

#57 APOL1-Mediated FSGS: What Families Need to Know, from Diagnosis to Advocacy

30 mins; April 07, 2025

#56 Navigating Dual Diagnoses: Amy Raskin Shares Parenting Strategies for Diabetes and Celiac

45 mins; March 17, 2025

#55 Growing Up with a Childhood Autoimmune Disease with Beth Glassman

41 mins; March 03, 2025

#54 Family Planning Challenges: Cathy Gildenhorn on Miscarriages and The Miracle of Adoption

30 mins; February 17, 2025

#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families

48 mins; February 03, 2025

#52 Adaptive Toys for Kids with Disabilities: Inspiration from Daughter with Rett Syndrome

41 mins; January 20, 2025

#51 Niemann-Pick Type C: Understanding Symptoms, Genetics, and New Treatments

46 mins; January 06, 2025

#50 Neuromuscular Neurology Explained: Symptoms, Treatments, and Advances with Dr. Bucelli

40 mins; December 16, 2024

#49 Living with NMOSD: Alex Brito's Journey of Resilience and Advocacy

28 mins; December 02, 2024

#48 Sudden Cardiac Death with The Dressmaker’s Mirror’s Dr. Susan Liebman

38 mins; November 18, 2024

#47 Living with NAION: Rachel Schreiman’s Journey Through Vision Loss and Advocacy

56 mins; November 04, 2024

#46 Decoding Colon Cancer: Expert Insights on Screening and Genetics from Gabrielle Shermanski

27 mins; October 21, 2024

#45 Adapting to Blindness Before 30 with Zach Ship

49 mins; October 07, 2024

#44 How a Kidney Transplant Saved Zach Ship’s Life at 19

30 mins; September 16, 2024

#43 Shari Ship on Donating Her Kidney to Son

47 mins; September 02, 2024

#42 Huntington’s Disease with Tanita Allen

37 mins; August 19, 2024

#41 Dwarfism with Colleen Gioffreda

57 mins; August 05, 2024

#40 Overcoming Crohn’s Through Pilates with Ryan Hodgkinson

42 mins; July 15, 2024

#39 Genetic Testing for Rare Diseases with Amy Patterson

42 mins; July 01, 2024

#38 Dr. Tara Zier on Stiff Person Syndrome

45 mins; June 17, 2024

#37 Congenital Hyperinsulinism with Advocate Julie Raskin

51 mins; June 03, 2024

#36 Cochlear Implant Surgery and Recovery with Marc Bassin

33 mins; May 20, 2024

#35 Sudden Hearing Loss with Marc Bassin

36 mins; May 06, 2024

#34 Bloom Syndrome with The Yasbins

31 mins; April 15, 2024

#33 Tay-Sachs and Grief with Myra Sack

33 mins; April 01, 2024

#32 Tay-Sachs and Carrier Screening with Dr. Matthew Goldstein

65 hours 33 mins; March 18, 2024

#31 Blood Transfusion Therapy with Lori Harada & Carly Newton

39 mins; March 04, 2024

#30 Rare Disease Advocacy with Wes Michael

36 mins; February 19, 2024

#29 Exploring the Potential of Artificial Corneas with Dr. Esen Akpek

23 mins; February 05, 2024

#28 Dry Eye with Dr. Esen Akpek

35 mins; January 15, 2024

#27 Prevention of Blindness Society

37 mins; January 01, 2024

#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano

33 mins; December 18, 2023

#25 Pancreatic Cancer with Patient Advocate Leslie Waldman

44 mins; December 04, 2023

#24 Neuro-Ophthalmic Disorders with Dr. Andrew Carey

55 mins; November 20, 2023

#23 Autoimmune Conditions with Dr. Colby Kash

54 mins; November 06, 2023

#22 Papillary Thyroid Cancer with Carly Flumer

20 mins; October 16, 2023

#21 Wolfram Syndrome with Parent Pat Gibilisco

28 mins; October 02, 2023

#20 Familial Dysautonomia Foundation

48 mins; September 18, 2023

#19 Pierre Robin Syndrome with Corinne Merlino

36 mins; September 04, 2023

#18 Hattersley-Urano Wolfram Syndrome with Parent Tamara Blum

33 mins; August 21, 2023

#17 Mental Health Help with Social Worker Tamara Blum

42 mins; August 07, 2023

#16 ALS with Brooke Eby

39 mins; July 17, 2023

#15 Bullous Pemphigoid with argenx

52 mins; July 03, 2023

#14 Multifocal Motor Neuropathy with argenx

44 mins; June 19, 2023

#13 Medical Challenges Toolkit with Kimberly Callinan

33 mins; June 05, 2023

#12 Bardet Biedl Syndrome with The Alms (Part 2)

49 mins; May 15, 2023

#11 Bardet Biedl Syndrome with The Alms (Part 1)

43 mins; May 01, 2023

#10 Low Vision with Dr. Judith Goldstein

45 mins; April 17, 2023

#9 Wolfram Syndrome with Stephanie Gebel Snow

38 mins; April 03, 2023

#8 Oculoplastic Surgery with Dr. Shannath Merbs

26 mins; March 20, 2023

#7 Prenatal and Cancer Genetic Testing with Karen Grinzaid

26 mins; March 06, 2023

#6 Glaucoma with Dr. Mona Kaleem

24 mins; February 20, 2023

#5 Wolfram Syndrome with Dr. Sarah Gladstone

38 mins; February 06, 2023

#4 Genetic Counseling for Rare Diseases with Kira Dineen

30 mins; January 23, 2023

#3 Wolfram Syndrome with Cathy Gildenhorn

16 mins; January 09, 2023

#2 Glaucoma and Low Vision with Beth Glassman

16 mins; January 09, 2023

#1 Inspiration to Launch “It Happened To Me”

21 mins; January 09, 2023

Trailer: It Happened To Me

2 mins; December 31, 2022

It Happened To Me: A Rare Disease and Medical Challenges Podcast

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