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Podcast: It Happened To Me: A Rare Disease and Medical Challenges Podcast
Episode: #73 Running Toward a Cure: NF2 Advocate Becomes Marathon Runner to Raise Awareness & Funds
Description: In this uplifting episode, hosts Beth Glassman and Cathy Gildenhorn sit down with Leanna Scaglione, a powerhouse rare disease advocate and marathon runner living with NF2-Related Schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2.
Diagnosed at just 16 years old, Leanna’s life changed dramatically when tumors were discovered in her nervous system, a hallmark of NF2-SWN. Many would have slowed down. Instead, Leanna sped up.
Today, she has:
Completed multiple marathons, including Berlin and New York City
Participated in clinical trials
Become an advocate and 2025 Ambassador for the Children’s Tumor Foundation
Set...