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Podcast: It Happened To Me: A Rare Disease and Medical Challenges Podcast
Episode: #65 Invisible Swells: Surviving with Hereditary Angioedema Type III
Description: In this episode of It Happened To Me, we sit down with the multi-talented Sally Pirie, a comic artist, painter, professor, toymaker, and rare disease advocate, to explore her journey living with Hereditary Angioedema Type III (HAE-3). Sally’s path to diagnosis was long, painful, and emotionally fraught, culminating in a deeply moving feature in The New York Times that helped shine a national spotlight on HAE and the broader diagnostic odyssey that so many rare disease patients face.
Sally opens up about the unpredictable flares of HAE, the mental toll of being misunderstood by the...