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Podcast: Hope Charities
Episode: She Refused to Stay Silent: Connie Montgomery on Diagnosis After Decades of Dismissal
Description: A candid conversation with Connie Montgomery charts a lifetime of being dismissed, the car accident that unlocked a Factor VII diagnosis, and the fight to secure prophylaxis. We spotlight bias, culture, and the power of narrative medicine to change outcomes for women with bleeding disorders.• Growing up with unexplained bruising and nosebleeds• Gullah Geechee cultural privacy and silence• Repeated dismissal by clinicians and loss of trust• Heavy menstrual bleeding through two pregnancies• Diagnosis after an ER doctor listened and consulted• Phenotype over lab numbers in rare bleeding care• Securing prophylaxis and navigating ins...