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Hope Charities
Honest conversations about bleeding disorders, rare diseases, and chronic illnesses.
How Patients Lose Access to Medication — The Hidden Impact of Alternative Funding Programs
54 mins; March 12, 2026
Misdiagnosed for 26 Years: Nandini Pethe on Living with Moderate Hemophilia
51 mins; February 26, 2026
How to Become a Self-Learner: Life Experience From Jorge de la Riva
25 mins; February 18, 2026
What Does Patient Advocacy Look Like in 2026?
61 hours 7 mins; February 12, 2026
Recent reporting on Adverse Events: A Thoughtful Conversation on Safety, Transparency, & Next Steps
42 mins; January 30, 2026
She Refused to Stay Silent: Connie Montgomery on Diagnosis After Decades of Dismissal
58 mins; December 08, 2025
More Than a Carrier: How Unexplained Injuries and Surgery Led Me to a Diagnosis - Amanda Gradzewicz
58 mins; October 31, 2025
Women with Bleeding Disorders: Resilience, Hope, and Advocacy with Dr. Danielle Nance
139 hours 23 mins; October 04, 2025
Healthcare in Crisis: The Truth About PBMs with Dr. Madelaine Feldman
69 hours 4 mins; April 07, 2025
Women with Bleeding Disorders: Empathy and Innovation in Patient Care
74 hours 21 mins; December 30, 2024
Empowering Women: Dr. Tamuella Singleton on Bleeding Disorders and Healthcare Equity
100 hours 47 mins; December 03, 2024
For women, the first line of defense may be with your OBGYN - Dr. Bivin Von Almen
48 mins; October 14, 2024
Dads helping daughters with hemophilia
84 hours 49 mins; August 12, 2024
Claudio Sandoval shares insights on his session at Joint Health on Sept 26 & 27
9 mins; September 22, 2023
Kevin Griggs shares insights on his session at Joint Health on Sept 26 & 27
8 mins; September 21, 2023
Fernando Reyes shares insights on his session at Joint Health on Sept 26 & 27
10 mins; September 20, 2023
Inside HOPE: A behind the scenes look at the second half of 2023
75 hours 34 mins; September 01, 2023
"Taking ownership of your health, community, future, and faith" a patient interview with special guest Rodney Dalrymple
53 mins; June 30, 2023
Plasma Derived Products: An Interview with Quality Assurance Expert, Maxwell Hunter.
42 mins; June 10, 2023
Partnering with your providers to make patient choice a priority featuring Patricia "Trish" Underland, R.N.
75 hours 25 mins; April 24, 2023
Fighting for what you need for you and your child is everything with Brittnee Vasil
78 hours 25 mins; April 10, 2023
Understanding HIPAA
67 hours 1 min; July 28, 2022
“Financial Assistance Legislative Challenges for people living with hemophilia and other rare disease
91 hours 31 mins; June 23, 2022
Episode Five: Jonathan James Ft. Hannah James- Through the eyes of a child
61 hours 21 mins; May 12, 2022
Episode Four: Jonathan James ft. Brad Creel and Simon Majumdar- Family, food & Health
50 mins; April 22, 2022
Episode Three: Jonathan James ft: Emma Benoit and Lori Bienvenu- Living through a mental health crisis takes courage
59 mins; April 07, 2022
Episode Two: Jonathan James Ft. Stephen Le- Life with Hemophilia
42 mins; March 24, 2022
Episode One: Jonathan James ft. Lesley Lamarie of Octapharma- Prophylaxis
33 mins; March 10, 2022
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