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Podcast: Hope Charities
Episode: Misdiagnosed for 26 Years: Nandini Pethe on Living with Moderate Hemophilia
Description: For 26 years, Nandini Pethe was misdiagnosed before learning she was living with moderate hemophilia. In this episode, she shares her journey from unexplained bruising in India to discovering factor VIII levels around 3%—and how the right diagnosis, the right team, and the right data changed her life.We discuss:• Early Symptoms and Misdiagnosis as von Willebrand Disease• A Locked Knee at 26 and First Effective Factor Infusions• Severe Joint Damage and Learning Bleed Pain vs. Arthritis Pain• Moving from On-Demand Treatment to Prophylaxis• Raising a Son with Hemophilia• ER Preparation and Advocating wit...