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Podcast: Hope Charities
Episode: What Does Patient Advocacy Look Like in 2026?
Description: We explore how HR1, a prolonged shutdown, and agency reshuffles affect access, affordability, and safety for people with rare and chronic conditions. With Dane Christensen and Jim Romano, we translate the DC process into patient wins and outline how your story drives change.• HR1’s budget mechanics and phase-in effects on healthcare• Medicaid redeterminations and benefit generosity pressures• Blood safety funding is maintained, but the advisory body is dormant• Shutdown delays to bipartisan health bills and why it matters• Premium tax credits, discharge petition, and likely compromise• PBM reform judged by out-of-pocket costs, not hea...