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Stronger Every Day: For Parents of Children with Rare Diseases

This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.

SED 386: Travel Hacks - Part 1 of 2

6 mins; June 07, 2022

SED 385: The Reaction

10 mins; May 31, 2022

SED 384: Prepping for an Extended Stay

7 mins; May 24, 2022

SED 383: Sleepytime T

5 mins; May 17, 2022

SED 382: Thanks for Thinking of Me but I Already Have a Job

12 mins; May 10, 2022

SED 381: Decked Out

9 mins; May 03, 2022

SED 380: Shhhh

6 mins; April 26, 2022

SED 379: Pickles

6 mins; April 19, 2022

SED 378: Tess Has a Passport

7 mins; April 12, 2022

SED 377: Four Seven

5 mins; April 05, 2022

SED 376: Laugh It Up, Fuzzball

5 mins; March 29, 2022

SED 375: Penny

9 mins; March 22, 2022

SED 374: Homeroom

10 mins; March 15, 2022

SED 373: Tess Is Listening to Los Angeles

9 mins; March 08, 2022

SED 372: The NeverStarting Story

6 mins; March 01, 2022

SED 371: An IEP Revelation

6 mins; February 22, 2022

SED 370: Start Here

13 mins; February 15, 2022

SED 369: Skis to the Kingdom - Part 2 of 2

12 mins; February 08, 2022

SED 368: Skis to the Kingdom - Part 1 of 2

17 mins; February 01, 2022

SED 367: Relax This Instant

7 mins; January 25, 2022

SED 366: Back and Forth

8 mins; January 18, 2022

SED 365: I'm Walkin Here

9 mins; January 11, 2022

SED 364: Sneakiness

6 mins; January 04, 2022

SED 363: Happy Holidays

4 mins; December 28, 2021

SED 362: Things We Know (about Tess's Language)

6 mins; December 21, 2021

SED 361: MetroMetroLand

15 mins; December 14, 2021

SED 360: A New Kind of PT

11 mins; December 07, 2021

SED 359: Grateful

6 mins; November 30, 2021

SED 358: Lady Man Club

7 mins; November 23, 2021

SED 357: Sleepless

6 mins; November 16, 2021

SED 356: Vaxxed

8 mins; November 09, 2021

SED 355: That's the Breaks

12 mins; November 02, 2021

SED 354: Uh-huh

9 mins; October 26, 2021

SED 353: The Tess Army Gathers

8 mins; October 19, 2021

SED 352: Hello My Friend

8 mins; October 12, 2021

SED 351: Can't Check the Box If You're Rare

10 mins; October 05, 2021

SED 350: Getting Old

7 mins; September 28, 2021

SED 349: Take It to the Bank

9 mins; September 21, 2021

SED 348: Here Are Your Friends

8 mins; September 14, 2021

SED 347: One Hundred

7 mins; September 07, 2021

SED 346: Done-zo

8 mins; August 31, 2021

SED 345: Taking a Tour

5 mins; August 24, 2021

SED 344: Twenty Percent More Tess

6 mins; August 17, 2021

SED 343: Tess in the ER Redux

15 mins; August 10, 2021

SED 342: The Big Kid

5 mins; August 03, 2021

SED 341: No Thanks, Olympics

5 mins; July 27, 2021

SED 340: Back in the Saddle

10 mins; July 20, 2021

SED 339: The Hour

5 mins; July 13, 2021

SED 338: Take a Dip

5 mins; July 06, 2021

SED 337: The John Wilson Pyles Memorial Award

8 mins; June 29, 2021

SED 336: There Are No Days Off

13 mins; June 22, 2021

SED 335: This Is Gonna Cost Ya - Part 2 of 2

12 mins; June 15, 2021

SED 334: This Is Gonna Cost Ya - Part 1 of 2

12 mins; June 08, 2021

SED 333: Astute Traveler

9 mins; June 01, 2021

SED 332: Let's Get (a) Physical

10 mins; May 25, 2021

SED 331: Miss Behaving

5 mins; May 18, 2021

SED 330: Shellshocked

11 mins; May 11, 2021

SED 329: The Funny Lady Returns

6 mins; May 04, 2021

SED 328: The Machine Is On

6 mins; April 27, 2021

SED 327: The Lion's Paw

8 mins; April 20, 2021

SED 326: No Soup for You

9 mins; April 13, 2021

SED 325: Shot

7 mins; April 06, 2021

SED 324: It's Go Time

10 mins; March 30, 2021

SED 323: Tess Gives Us a Scare

10 mins; March 23, 2021

SED 322: Nacho Nacho Man

8 mins; March 16, 2021

SED 321: The Endocrine System

10 mins; March 09, 2021

SED 320: RDD in the 207

8 mins; March 02, 2021

SED 319: The T-Bird Learns from Marvel Villains

10 mins; February 23, 2021

SED 318: Level Up

9 mins; February 16, 2021

SED 317: Tess Makes Two Sounds

8 mins; February 09, 2021

SED 316: Being There

11 mins; February 02, 2021

SED 315: The First Words of the Morning

7 mins; January 26, 2021

SED 314: Sriracha

6 mins; January 19, 2021

SED 313: It's a Mistake

7 mins; January 12, 2021

SED 312: B and P

8 mins; January 05, 2021

SED 311: See Ya, 2020

7 mins; December 29, 2020

SED 310: Better Than a Walkman

5 mins; December 22, 2020

SED 309: Olfactory Adventures

5 mins; December 15, 2020

SED 308: Tested

11 mins; December 08, 2020

SED 307: The Place to Be

5 mins; December 01, 2020

SED 306: The Reservoir

7 mins; November 24, 2020

SED 305: Choppin Broccolay

12 mins; November 17, 2020

SED 304: Oddly Satisfying

7 mins; November 10, 2020

SED 303: Sorry, I Have to Ask

8 mins; November 03, 2020

SED 302: Halloween Is Cancelled

8 mins; October 27, 2020

SED 301: The Questions Never End

10 mins; October 20, 2020

SED 300: Chicago, in Your Living Room

13 mins; October 12, 2020

SED 299: The Square Package

9 mins; October 06, 2020

SED 298: Old Man Sounds

8 mins; September 29, 2020

SED 297: Baba Ganoush

10 mins; September 22, 2020

SED 296: All the Cool Kids Are Doing It

6 mins; September 15, 2020

SED 295: The Return

5 mins; September 08, 2020

SED 294: The Circle of Awesomeness

7 mins; September 01, 2020

SED 293: Almost Back to School

5 mins; August 25, 2020

SED 292: It's On

9 mins; August 18, 2020

SED 291: Named

11 mins; August 11, 2020

SED 290: Shield

8 mins; August 04, 2020

SED 289: Play Ball

10 mins; July 24, 2020

SED 288: No Comment

8 mins; July 21, 2020

SED 287: July 13

12 mins; July 14, 2020

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Stronger Every Day: For Parents of Children with Rare Diseases

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