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Stronger Every Day: For Parents of Children with Rare Diseases

This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.

SED 090: Wanna Be Startin' Somethin'

13 mins; October 04, 2016

SED 089: Iron Man, Thor, and Tess

11 mins; September 26, 2016

SED 088: Getting to Know You

14 mins; September 20, 2016

SED 087: Bring It On -- New Battles in IEP-Land

17 mins; September 13, 2016

SED 086: Au Contraire, Ma Soeur

15 mins; September 06, 2016

SED 085: Tess Meets a Boy from Maryland

11 mins; August 29, 2016

SED 084: Super-Quick Genetics Update

4 mins; August 09, 2016

SED 083: PermaToddler (Intellectual Disabilities Part 2)

12 mins; August 09, 2016

SED 082: Here's the Deal (Intellectual Disabilities Part 1)

12 mins; August 09, 2016

SED 081: Tess's Island

16 mins; August 01, 2016

SED 080: Keys to the DeLorean

10 mins; July 21, 2016

SED 079: I'm On To You, Mike

13 mins; July 18, 2016

SED 078: Camper Tess

15 mins; July 12, 2016

SED 077: If You Are Still Breathing, Vacation Is Good

10 mins; July 05, 2016

Eagle Eye - score sheet

0 secs; June 29, 2016

Eagle Eye - a highway travel game

0 secs; June 29, 2016

SED 076: The Golden Days of MC Hammer

15 mins; June 24, 2016

SED 075: Top 5 Funniest Tess Moments

12 mins; June 21, 2016

SED 074: A Test We Actually Enjoy Taking

13 mins; June 13, 2016

SED 073: Safe from Mosquitoes and Other Badness

11 mins; June 07, 2016

SED 072: Tess Doesn't Like Frozen

9 mins; May 27, 2016

SED 071: A Sherman Tank Instead of an Elevator

11 mins; May 24, 2016

SED 070: Apple vs My Car

13 mins; May 17, 2016

SED 069: The Closest Match Yet

13 mins; May 10, 2016

SED 068: Special Is An Understatement

16 mins; May 03, 2016

SED 067: A Bad Break

16 mins; April 26, 2016

SED 066: How Not to Get the Crazies at Work

9 mins; April 19, 2016

#65: Somebody at Recess Loves You

9 mins; April 11, 2016

SED 064: What Some Dude Said about My Wife

12 mins; April 05, 2016

SED 063: Florida, Airports, and Alonzo Mourning

16 mins; March 29, 2016

SED 062: Parallel Stars

13 mins; March 21, 2016

SED 061: Reach > Grasp

11 mins; March 07, 2016

SED 060: The Rarest of All Days

17 mins; March 07, 2016

SED 059: Busted

7 mins; February 23, 2016

SED 058: The Wanderer

11 mins; February 23, 2016

SED 057: What Happens When We Fight

11 mins; February 16, 2016

SED 056: What School Districts Should Not Do to Tess

10 mins; February 09, 2016

SED 055: Big Sister Tess

10 mins; February 01, 2016

SED 054: I Speak for the Dads

11 mins; January 26, 2016

SED 053: Beleaguered but Still Bright

15 mins; January 19, 2016

SED 052: Hey, Who Moved My Q?

12 mins; January 12, 2016

SED 051: One-Item Wishlist

9 mins; January 05, 2016

SED 050: The Top 4 Most Validating Moments of 2015

8 mins; December 29, 2015

SED 049: Bad Day at Dog Park

21 mins; December 22, 2015

SED 048: How I Foiled the Thieves

11 mins; December 14, 2015

SED 047: What to Get Your Dad for Xmas

9 mins; December 08, 2015

SED 046: Tess Is an Old Soul

9 mins; December 01, 2015

SED 045: Animal House

9 mins; November 24, 2015

SED 044: Talking Is Harder Than We Thought

9 mins; November 17, 2015

SED 043: I Got the Toy Store Blues

12 mins; November 09, 2015

SED 042: Speaking In Tongues

11 mins; November 03, 2015

SED 041: The Tess Army

8 mins; October 26, 2015

SED 040: Don't Push This Button

9 mins; October 20, 2015

SED 039: I Need Genetics For Dummies

17 mins; October 13, 2015

SED 038: These People Just Don't Get Tired

15 mins; October 06, 2015

037: Learning to Ruffle Feathers

11 mins; September 29, 2015

SED 036: Are You With Us?

10 mins; September 22, 2015

SED 035: We Find An Answer

17 mins; September 15, 2015

SED 034: Kindergartener Tess

11 mins; September 07, 2015

SED 033: Art Camp Is Dangerous

12 mins; September 01, 2015

SED 032: Surprises on the Genetic Trail

14 mins; August 25, 2015

SED 031: Kindergarten Transition pt 2

9 mins; August 10, 2015

SED 030: The Genetic Mystery Continues

11 mins; August 10, 2015

SED 029: Alcatraz-Style Escapes

10 mins; July 23, 2015

SED 028: The Dark Night of Uncertainty

15 mins; July 23, 2015

SED 027: Med Reckoning

11 mins; July 07, 2015

SED 026: Tooth or Consequences

8 mins; July 07, 2015

SED 025: Kindergarten Transition pt 1

10 mins; July 07, 2015

SED 024: Summer Survival Guide Pt 2

8 mins; June 23, 2015

SED 023: Summer Survival Guide Pt 1

7 mins; June 23, 2015

SED 022: As Luck Would Have It

10 mins; June 17, 2015

SED 021: Put Down the Cracked Cup

11 mins; June 09, 2015

SED 20: I Blew It

11 mins; June 02, 2015

SED 019: Label My Kid Please

13 mins; May 26, 2015

SED: 018: Under My Roof, You Do Chores

7 mins; May 11, 2015

SED 017: What to Expect at an IEP Meeting, and What We Never Expected

13 mins; May 11, 2015

SED 016: Playdating

8 mins; April 20, 2015

SED 015: Dad Taxi

10 mins; April 20, 2015

SED 014: Work-Life Balance

10 mins; April 20, 2015

SED 013: Astronauts Wanted

9 mins; April 14, 2015

SED 012: Race Car in the Red

8 mins; April 07, 2015

SED 011: Please, Be Seated

8 mins; March 31, 2015

SED 010: The Dana Show

8 mins; March 20, 2015

SED 009: Thanks and No Thanks

10 mins; March 18, 2015

SED 008: Getting a Little Testy

14 mins; March 11, 2015

SED 007: Aircraft Equipped with Frustration Device

9 mins; March 03, 2015

SED 006: You're Both My Favorite

10 mins; February 24, 2015

SED 005: Shawarma and the Showdown

9 mins; February 18, 2015

SED 004: Why Yes, Those Are My Glasses in the Microwave

8 mins; February 10, 2015

SED 003: Someone to Help Burn Down Your Backyard

8 mins; February 03, 2015

SED 002: More Songs About Groceries and Pass Interference

10 mins; January 27, 2015

#1: Escaping the Chunderdome

9 mins; January 21, 2015

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Stronger Every Day: For Parents of Children with Rare Diseases

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