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Stronger Every Day: For Parents of Children with Rare Diseases

This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.

SED 186: This Episode Is About Nothing

5 mins; August 06, 2018

SED 185: Don't Even Say It

9 mins; July 31, 2018

SED 184: Aftermath

8 mins; July 24, 2018

SED 183: Tess in the ER

15 mins; July 17, 2018

SED 182: Pipes

8 mins; July 10, 2018

SED 181: Travel Bug

13 mins; July 02, 2018

SED 180: 3 Years Back in Time

8 mins; June 25, 2018

SED 179: 365 Shots

9 mins; June 19, 2018

SED 178: Four Extraordinary Boys

12 mins; June 12, 2018

SED 177: MC

8 mins; June 05, 2018

SED 176: Tess the Fragile

9 mins; May 29, 2018

SED 175: The Power of The Home Depot

13 mins; May 22, 2018

SED 174: The Wildest Experiences Become the Best Stories

9 mins; May 15, 2018

SED 173: Atlanta part 2

10 mins; May 08, 2018

SED 172: Atlanta part 1

11 mins; May 01, 2018

SED 171: Jackie Chan, Prohibition's End, and Us

8 mins; April 24, 2018

SED 170: Quick Update + Bryan Leach of Ibotta

20 mins; April 16, 2018

SED 169: Switcheroo

11 mins; April 10, 2018

SED 168: Happy Ski-ster

8 mins; April 03, 2018

SED 167: Tess's BFF

7 mins; March 27, 2018

SED 166: ASMR You Ready to Go?

12 mins; March 20, 2018

SED 165: Maybe It's Not Just Me

10 mins; March 13, 2018

SED 164: The Supermarket Answer

15 mins; March 06, 2018

SED 163: Fever

13 mins; February 26, 2018

SED 162: Hip Hop Hooray

11 mins; February 16, 2018

SED 161: Tess Hits the Hay

9 mins; February 13, 2018

SED 160: Painfully Obvious

14 mins; February 06, 2018

SED 159: The Not-So-Distant Future

10 mins; January 30, 2018

SED 158: The T-Bird in the Pool

10 mins; January 23, 2018

SED 157: Tess Got Hurt

10 mins; January 16, 2018

SED 156: I'm Outta Here

10 mins; January 09, 2018

SED 155: Tess Triumphs

11 mins; January 02, 2018

SED 154: Epic Fails

17 mins; December 26, 2017

SED 153: I Am Tess and I Break Things

12 mins; December 19, 2017

SED 152: Invisible Dad

9 mins; December 12, 2017

SED 151: No Such Thing As Full - Hyperphagia and Pica

9 mins; December 05, 2017

SED 150: Mysterious Man in Hospital Room

10 mins; November 28, 2017

SED 149: No Pity Party

9 mins; November 21, 2017

SED 148: Ron Burgundy or Han Solo

10 mins; November 14, 2017

SED 147: I Have The Power

7 mins; November 04, 2017

SED 146: Our Second-Grade Interrogator

11 mins; October 31, 2017

SED 145: Silver Screen Bean

14 mins; October 24, 2017

Raatz call 10-23-17

13 mins; October 23, 2017

SED 144: Gala part 2

11 mins; October 17, 2017

SED 143: Gala part 1

9 mins; October 10, 2017

SED 142: Yes No Yes

10 mins; September 26, 2017

SED 141: Tess Is A Punk

7 mins; September 26, 2017

SED 140: Planting the Seeds

8 mins; September 19, 2017

SED 139: Roller Skating

17 mins; September 13, 2017

SED 138: On Her Own at the Elementary School

8 mins; September 05, 2017

SED 137: Big Girl Tess

7 mins; August 29, 2017

SED 136: The Snub

11 mins; August 22, 2017

SED 135: Holidays in the Sun

9 mins; August 11, 2017

SED 134: Not Much You Can Do After Elevensies

8 mins; August 08, 2017

SED 133: Who Put This Empty Cereal Box Back

9 mins; July 31, 2017

SED 132: Summer Lovin'

5 mins; July 25, 2017

SED 131: Growing Up Is Hard

8 mins; July 17, 2017

SED 130: Tess Finds a Jewel in the Empire State

13 mins; July 11, 2017

Bryan Leach of Ibotta

17 mins; July 04, 2017

SED 129: Talking to the Fine Folks at Ibotta about Tess and USP7

13 mins; July 04, 2017

SED 128: Make It Go Clickety-Clackety

14 mins; June 27, 2017

SED 127: Father's Day Studio Ambush

7 mins; June 18, 2017

SED 126: Bacon, Saved

9 mins; June 12, 2017

SED 125: T-Bird Sunrise

6 mins; June 06, 2017

SED 124: Nighttime Additives, Fully Natural

13 mins; May 30, 2017

SED 123: Mama Mia

8 mins; May 23, 2017

SED 122: Frisbee of Sadness

8 mins; May 16, 2017

SED 121: 100-Meter Snuggle

9 mins; May 08, 2017

SED 120: Like Superman in the Hospital

9 mins; May 02, 2017

SED 119: This Is What We Trained For

12 mins; April 24, 2017

SED 118: Pac-Man and Giraffe Tongues

17 mins; April 18, 2017

SED 117: We Belong

9 mins; April 11, 2017

SED 116: Urgent Message from Tess

7 mins; April 03, 2017

SED 115: Set the Table

5 mins; March 21, 2017

SED 114: Two Big Things Tess Taught Us This Winter

8 mins; March 21, 2017

SED 113: Mascots Can't Be Included

9 mins; March 14, 2017

SED 112: Up

11 mins; March 07, 2017

SED 111: Princess Nocandy

8 mins; February 28, 2017

SED 110: Stand Up

8 mins; February 17, 2017

SED 109: Down for the Count

8 mins; February 14, 2017

SED 108: Nine Against the Mountain

9 mins; February 07, 2017

SED 107: Manifesto

7 mins; January 31, 2017

SED 106: Dept of Hassle and Harassment Services

11 mins; January 24, 2017

SED 105: These Are The Scars

6 mins; January 17, 2017

SED 104: Bunny Slope

12 mins; January 10, 2017

SED 103: Ending a Year of Silence

9 mins; January 03, 2017

SED 102: Doctor Doctor, Gimme the News

5 mins; December 26, 2016

SED 101: The Sankey Conversation

8 mins; December 19, 2016

SED 100: Dana Takes Control

16 mins; December 13, 2016

SED 099: Tess and the Dangerous Places

11 mins; December 06, 2016

SED 098: Thankful for the Funny Lady

11 mins; November 28, 2016

SED 097: Go Away

9 mins; November 22, 2016

SED 096: Our Girl Was Tough on You

8 mins; November 15, 2016

RDFF Email Logo

0 secs; November 10, 2016

Facebook icon for email

0 secs; November 10, 2016

SED 095: When I Grow Up, I Wanna Be a Sweetie Pie

9 mins; November 07, 2016

SED 094: Hooray for This Conference Call

13 mins; November 02, 2016

SED 093: IEP Part 2 - Not the Way to Cleveland

19 mins; October 25, 2016

SED 092: Do You Really Want to Hurt Me?

12 mins; October 18, 2016

SED 091: Tess TV

9 mins; October 11, 2016

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Stronger Every Day: For Parents of Children with Rare Diseases

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