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Stronger Every Day: For Parents of Children with Rare Diseases

This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.

SED 286: A Forest

10 mins; July 07, 2020

SED 285: Extended

9 mins; June 30, 2020

SED 284: Walking the Path

4 mins; June 23, 2020

SED 283: Skin Deep

8 mins; June 16, 2020

SED 282: Lucas

13 mins; June 09, 2020

SED 281: Up All Nite

3 mins; June 02, 2020

SED 280: Let's Play

7 mins; May 26, 2020

SED 279: OT Goes into OT

8 mins; May 19, 2020

SED 278: A Circle of Friends

5 mins; May 12, 2020

SED 277: I Gotcha Now

6 mins; May 05, 2020

SED 276: Edge of the World

8 mins; April 28, 2020

SED 275: My Mistake

9 mins; April 21, 2020

SED 274: How Not to Go Stir Crazy

9 mins; April 14, 2020

SED 273: Bad at Homeschooling

10 mins; April 07, 2020

SED 272: Vertigo

10 mins; March 31, 2020

SED 271: Some Good News about Tess

7 mins; March 24, 2020

SED 270: Coronavirus Lockdown

5 mins; March 17, 2020

SED 269: Included Pt 4

7 mins; March 10, 2020

SED 268: Included Pt 3

7 mins; March 03, 2020

SED 267: Included Pt 2

7 mins; February 25, 2020

SED 266: Included

6 mins; February 18, 2020

SED 265: Absolute Zero

5 mins; February 11, 2020

SED 264: Hip Check

7 mins; February 04, 2020

SED 263: Singer, Unsteady

8 mins; January 28, 2020

SED 262: The One-Day Exhibit

7 mins; January 21, 2020

SED 261: The Lockup

10 mins; January 14, 2020

SED 260: Her Aim Is True

12 mins; January 07, 2020

SED 259: My Music Buddy (rerun)

10 mins; December 31, 2019

258: Happy and Merry

6 mins; December 24, 2019

SED 257: Begrudgingly

9 mins; December 17, 2019

SED 256: White Discourtesy Telephone

9 mins; December 10, 2019

SED 255: Tess Does a Can Opener

10 mins; December 03, 2019

SED 254: Festival Pt 2

13 mins; November 26, 2019

SED 253: Festival

9 mins; November 19, 2019

SED 252: I Really Can't Talk Right Now

2 mins; November 12, 2019

SED 251: Back on Track

9 mins; November 04, 2019

SED 250: Special 250th Episode

14 mins; October 29, 2019

SED 249: Getting on the Map Pt 2

11 mins; October 22, 2019

SED 248: Getting on the Map

18 mins; October 15, 2019

SED 247: For Tess, Seeing Is Believing

8 mins; October 08, 2019

SED 246: Back to Global Genes Pt 2

17 mins; September 30, 2019

SED 245: Back to Global Genes

10 mins; September 24, 2019

SED 244: The Light Fantastic

8 mins; September 16, 2019

SED 243: Hiring Bruce Banner

12 mins; September 10, 2019

SED 242: Live and Die by the Tides

11 mins; September 03, 2019

SED 241: I Want to Meet Governor Janet Mills

17 mins; August 27, 2019

SED 240: Becoming a Noticer

11 mins; August 20, 2019

SED 239: The Walnut Is Laughing

6 mins; August 09, 2019

SED 238: Megan

9 mins; August 06, 2019

SED 237: Sugar Baby

12 mins; July 26, 2019

SED 236: Worst Procrastinator Ever

9 mins; July 23, 2019

SED 235: Oh No You Didn't

10 mins; July 16, 2019

SED 234: Island Time

7 mins; July 09, 2019

SED 233: Happy 4th

5 mins; July 02, 2019

SED 232: After the Award

11 mins; June 24, 2019

SED 231: Breakfast in Bed

9 mins; June 18, 2019

SED 230: The Sovereign Nation of Tess

6 mins; June 11, 2019

SED 229: Science to the Rescue

6 mins; June 03, 2019

SED 228: Just the Check Please

9 mins; May 27, 2019

SED 227: Get a Move On

8 mins; May 21, 2019

SED 226: I'm a Big Fan

9 mins; May 14, 2019

SED 225: The Pearly Whites of Tess

10 mins; May 07, 2019

SED 224: On Your Mark Get Set Throw

11 mins; April 30, 2019

SED 223: News from France

6 mins; April 23, 2019

SED 222: Out and About with Miss Tess

9 mins; April 16, 2019

SED 221: Jackpot

10 mins; April 09, 2019

SED 220: Madness

10 mins; April 02, 2019

SED 219: Snack Attack

9 mins; March 26, 2019

SED 218: This Is Bedtime

11 mins; March 19, 2019

SED 217: Birds and Mysteries

15 mins; March 12, 2019

SED 216: Feb Break Part 2

9 mins; March 05, 2019

SED 215: Feb Break Part 1

6 mins; February 26, 2019

SED 214: Hanging Out with Us in Our PJs

10 mins; February 15, 2019

SED 213: Tessie B Ha Ha Ha

6 mins; February 12, 2019

SED 212: Mood Ring

8 mins; February 05, 2019

SED 211: (Do Not) Jump Around

14 mins; January 29, 2019

SED 210: My Music Buddy

10 mins; January 22, 2019

SED 209: True

10 mins; January 15, 2019

SED 208: Four Years

14 mins; January 08, 2019

SED 207: The Late Show with Tess Bigelow

9 mins; January 01, 2019

SED 206: The Voyagers

12 mins; December 25, 2018

SED 205: The Champions

9 mins; December 18, 2018

SED 204: Oaty McOatface

10 mins; December 11, 2018

SED 203: Ice and Paper Towels

13 mins; December 04, 2018

SED 202: Surprise

10 mins; November 27, 2018

SED 201: Three Times Thankful

5 mins; November 20, 2018

SED 200: The Smartest

12 mins; November 13, 2018

SED 199: Banzai

8 mins; November 06, 2018

SED 198: Boomerang

14 mins; October 30, 2018

SED 197: What Daisy Knows

14 mins; October 23, 2018

SED 196: More Stories from the Land Where Cures Are Found

29 mins; October 16, 2018

SED 195: Stories from the Land Where Cures Are Found

23 mins; October 09, 2018

SED 194: All the Feels Pt 2

10 mins; September 27, 2018

SED 193: All the Feels

8 mins; September 25, 2018

SED 192: Werd

11 mins; September 18, 2018

SED 191: The Other Day I Saw a Bear

10 mins; September 10, 2018

SED 190: The Crankypants

8 mins; September 04, 2018

SED 189: Resolution

7 mins; August 28, 2018

SED 188: The Princess of Tides

9 mins; August 21, 2018

SED 187: Days with Tess

5 mins; August 06, 2018

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Stronger Every Day: For Parents of Children with Rare Diseases

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